Make a Wish

February 18th, 2005 - 9:29pm by Mom
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Boy, what a long day! We left for Mpls Children's hosp. this morning aroung 7am and just got home around 7:30 pm. Kevin had his hearing test this morning. Then it was off to surgery for the bone morrow test from both hips, and after that the placement of the port-a-cath. There were many consultations with surgeons, oncologist, social worker, ext. throughout the day. But again many positives! We can do the 3 chemo days on Fri, Sat, and Sun for the most part. That way I won't have to miss as much work, and Kevin will be able to go to school if he is feeling okay. So instead of chemo starting this Tues, it will start this Fri, a week from today. Kevin will be inpatient on Fri and Sat for the first 2 doses of chemo, then we'll drive back on Sun for the 3rd dose. Hopefully, he will be a fast responder and not need the heavier chemo down the road. Even the one he will start on is a cocktail of 8 different nasty drugs. I absolutely cringe at the thought of that going into his body, but hopefully it will kill the bigger "nasties" as Ryan calls his cancer cells. They have very good medications now for all of the side-effects, so hopefully all will go well.

Good news! We found out today that Kevin will be a recipient of a wish from the Make-a-Wish Foundation. He can wish for anything from a trip which would include his parents and siblings, or something else that he may want. He has to make his choice before June, but then can wait to activate the wish until he is through with treatment. So that is something for him to look forward to throughout the bleak months ahead.

We did go see his high school guidance counsler Wed morning before heading to the cities. His teachers are all very suoportive and willing to e-mail classroom notes and video some classes. Hopefully he will be able to maintain his 4.0 GPA.

Kevin is pretty sore and tired tonight. He has been remaining positive. There is a wonderful oncology RNCNP that is very involved with Kevin who totally relates to teens. She has been terrific in helping him adjust to this. I can't say enough good things about this hospital. They have all been so fantastic to all three of us. Thanks everyone for the comments of support and all of the prayers--they must be working because things are going our way!!

February 19, 2005 - 12:48am
Slye Fox says:

"trip which would include his parents and siblings" - that sounds kool! Warm sunny beaches and mohitos. :)

Glad to know that the slicing and dicing is over with. Let me know when the dome turns to chrome.

Ryan

February 20, 2005 - 6:11pm
Wes says:

Hey Kevin, this is your cuz Wes. Ready to show you the St. John's campus whenever you are. Also, I heard you are giving up your hair for lent--very impressive! I hope for better weeks ahead,

Wes